Okay, so those of us with special needs children who can't go everyplace with us know we often have to make a choice. Daryl and I do this all the time. Who goes to an event and who stays home with Anna? I am fortunate to have great respite care workers, but there are times when they simply aren't available. Or maybe something comes up and there's no time to call someone.
Last week was Mary's film festival at college. We decided not to go because it was a Friday night and traffic would be bad. Daryl is taking his last two personal days in June so I can go to North Carolina for my niece's graduation. That left him with no days to use. However, at the last minute, late at night, he decided to take a mental health sick day and go. There was no time to call anyone to sit with Anna, so I had to stay home. It was really hard on me because if the decision had been made earlier, I could have gone.
This is our life, though. And I've been able to travel to writers conferences as far away as California. I spend time with friends and family. I go to workshops and my writers groups. It's all part of being a serious writer, but I'm thankful I can attend these things.
It got me to thinking about what I have and what I wish I had. Of course, I wish Anna was normal and doing normal things. I wish she was seizure free. I want to have to adjust to an empty nest. I want to attend her college graduation or see her in a play or visit her apartment. I want to feel proud of her, like I do with Mary. I'm often frustrated because I don't have these things.
Being content is hard for me. It's an ongoing process, which I work on every single day. Some days, I'm pretty good. Some days, I'm not. But this is what God has given me, so I have to deal with it the best way I can. And that means often deciding who goes and who stays.
How do you handle choosing who can attend a function and who can't?
Encouragement from a fellow special mama
7/31/2020 3:36:00 PM by: pam
A Sister's Love
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Medical Moms
1/26/2019 7:03:00 AM by: pam
The Power of Doritos
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Yay For Friends!
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Show You!
9/11/2017 12:58:00 PM by: pam
Happy? 26th Birthday, Anna
5/15/2017 7:37:00 AM by: pam
Re-grouping
3/14/2017 8:10:00 AM by: pam
We can relate!
9/1/2016 8:00:00 AM by: pam
A Little Fall Fun
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Going Commando
10/5/2015 6:37:04 PM by: pam
So Behind
9/22/2015 8:42:33 AM by: pam
Stares and Storytime
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Big Big Changes
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Blog Post on Autism
9/22/2014 7:30:14 AM by: pam
The Power of Pets
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Depression's Demands
8/15/2014 2:19:26 PM by: pam
Do We or Don't We?
8/4/2014 12:00:01 AM by: pam
Falling Down
6/22/2014 1:36:52 PM by: pam
Research Study
5/23/2014 12:48:08 PM by: pam
Who goes? Who stays?
5/19/2014 12:11:51 PM by: pam
Being Thankful
4/25/2014 7:37:26 AM by: pam
Excellent Article
4/7/2014 7:03:09 AM by: pam
Jury Duty and Holland
3/27/2014 7:36:35 AM by: pam
I Confess
3/17/2014 8:11:55 AM by: pam
The Dreaded Medication Change
3/4/2014 12:49:56 PM by: pam
Keeping It Together - part seven
2/24/2014 1:03:18 PM by: pam
Keeping it Together - part six
2/10/2014 8:20:16 AM by: pam
A Milestone Day
2/3/2014 8:13:17 AM by: pam
Keeping it together - part five
1/21/2014 6:43:18 AM by: pam
Keeping It Together - part four
1/3/2014 7:56:02 AM by: pam
Keeping it Together - part three
12/16/2013 7:34:46 AM by: pam
Keeping it Together - part two
12/9/2013 6:30:25 AM by: pam
Keeping it Together - part one
12/5/2013 8:00:03 AM by: pam
Catching Up
11/13/2013 8:22:00 AM by: pam
The Perfect House
10/25/2013 8:06:56 AM by: pam
Another Mom in the Mix
10/7/2013 3:11:58 PM by: pam
Grieving the Loss
9/24/2013 8:39:13 AM by: pam
Great article
9/11/2013 1:06:06 PM by: pam
This and That
9/9/2013 4:09:18 PM by: pam
Fun in the ER
8/30/2013 9:17:32 AM by: pam
Bless me, Anna!
8/14/2013 1:51:41 PM by: pam
Talk to me, Anna!
8/8/2013 5:04:30 PM by: pam
God's Will
7/30/2013 3:13:08 PM by: pam
Update on Anna's bloodwork
7/24/2013 6:31:05 AM by: pam
Stirring the Cesspool
7/11/2013 6:27:11 AM by: pam
Vacation and Other Fun Stuff
7/3/2013 5:46:28 AM by: pam
A Day at the Beach
6/17/2013 8:05:05 AM by: pam
Anna's Surgery Experience
6/5/2013 12:03:49 PM by: pam
No Place For Anna
5/26/2013 8:27:52 AM by: pam
Painful Gifts
5/21/2013 8:56:57 AM by: pam
Happy 22nd Birthday, Anna!
5/15/2013 6:48:55 AM by: pam
A Rough Day
5/6/2013 6:18:44 AM by: pam
Things I've Learned - part five
4/30/2013 8:02:08 AM by: pam
Things I've Learned - part four
4/22/2013 6:51:41 AM by: pam
Things I've Learned - part three
4/15/2013 6:14:06 AM by: pam
Things I've Learned - part two
4/9/2013 7:40:11 AM by: pam
Interview with Terri Groh
4/5/2013 5:44:08 AM by: pam
Things I've Learned - part one
4/3/2013 7:55:42 AM by: pam
The Things People Say - part eight
3/27/2013 6:06:08 AM by: pam
Comparisons
3/18/2013 8:06:43 AM by: pam
Why Is It A Blessing?
3/11/2013 6:24:04 AM by: pam
Tim's Place
3/8/2013 11:57:02 AM by: pam
New Medication Worries
3/5/2013 6:38:36 AM by: pam
A Night Out for Anna
2/25/2013 11:29:44 AM by: pam
Play it again, Sam
2/20/2013 5:47:32 AM by: pam
Happy Birthday
2/15/2013 5:32:13 AM by: pam
The Anna Bowl
2/4/2013 8:01:33 AM by: pam
The Queen of Babble-on
1/30/2013 12:45:36 PM by: pam
Really, people?
1/25/2013 7:36:11 AM by: pam
Cold Feet
1/23/2013 7:55:46 AM by: pam
Hearing God
1/15/2013 6:58:57 AM by: pam
Running Away
1/10/2013 11:19:00 AM by: pam
Post-Christmas-Reentry-Syndrome
1/4/2013 6:49:36 AM by: pam
Emmanuel, God With Us
12/17/2012 6:51:08 AM by: pam
Take Heart
12/7/2012 4:42:07 AM by: pam
Jumping in the Leaves
11/27/2012 5:56:16 AM by: pam
Being Thankful
11/19/2012 7:02:07 AM by: pam
Patience and Love and Wretchedness
11/13/2012 7:38:47 AM by: pam
A Typical Halter Vacation
11/8/2012 8:35:45 AM by: pam
Is This Really My Life?
11/1/2012 5:21:04 AM by: pam
Frankenstorm
10/27/2012 4:22:45 PM by: pam
A Small Victory at Anna's Program
10/24/2012 7:21:36 AM by: pam
Update on the problem at Anna's program
10/22/2012 8:23:51 AM by: pam
The Fight Goes On
10/19/2012 4:55:06 AM by: pam
Fighting the Good Fight
10/18/2012 7:01:44 AM by: pam
Sit down, Anna
10/16/2012 6:44:47 AM by: pam
The Things People Say - conclusion
10/15/2012 8:32:45 AM by: pam
The Cloaking Device
10/12/2012 6:22:27 AM by: pam
The Things People Say - part seven
10/11/2012 5:56:56 AM by: pam
The Things People Say - part six
10/10/2012 5:35:53 AM by: pam
The Things People Say - part five
10/9/2012 6:59:06 AM by: pam
The Things People Say - part four
10/4/2012 6:00:52 AM by: pam
The Things People Say - part three
10/3/2012 6:09:22 AM by: pam
The Things People Say - part two
10/2/2012 5:29:13 AM by: pam
The Things People Say - part one
10/1/2012 7:52:27 AM by: pam
Godzilla Lives at my House
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The Early Bird Gets Eaten
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Over and Over Again
9/25/2012 5:15:50 AM by: pam
What Good Are Seizures?
9/21/2012 11:48:29 AM by: pam
Why Me?
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The Rest of my Life?
9/19/2012 5:47:36 AM by: pam
Feelings
9/18/2012 1:23:56 PM by: Pam
